Infiltrating Lobular Carcinoma

OrionRose · New User Joined: 02 Aug 2008 Posts: 1

This is what they think my mother has, she was diagnosed at the end of last week. She goes in for an MRI on Thursday to find out the extent, but at the same time for this type of cancer they said they won't really be able to tell that much anyway. We thought this was going to be simpler because it seemed small and new, but due to the type of cancer now they're not sure.

My apologies if this is discussed elsewhere. I know forums and the taboo of repeat threads. I just don't want to go sorting through a bunch of different cancer threads looking for information. It's hard enough to post this.

What I'm looking for is alternate methods of treatment. Any and every. The doctor said that they're going to take out her first two lymph nodes on that side as a safety precaution regardless of what they find in the MRI. There were mentions of "arm swelling" as a possible side effect but I'm wondering what else might lie in store.

I'm sorry for the vagueness here. We don't know much at this point and rather then stabbing at the aether I'd much rather the research come to me.

Thanks in advance to anyone who helps. I don't like looking into this. But I'd much rather myself do it than my mother. She has enough on her mind right now.

elliegirl · New User Joined: 24 Jul 2008 Posts: 5 Location: NC.

Hi, So sorry about your Mom's dx. But sounds like they cought it early.

I don't know what type of BC she has. Mine was a mucinous carcinoma, somewhat rare it seems, I was dx two years ago and I'm doing great.
I know the fear you and your family must be feeling.

Make sure you ask for copies of all her path. reports.

I only had a little swelling after my lymph nodes were removed. But I felt more pain in my underarm then my breast after my lumpectomy, so she will be sore. Please keep us posted on her condition.

I wil keep you and your Mom in my thoughts and prayers.

Ellen

JM

Hi OrionRose,

I have bilateral,(both breasts), Stage 3 C lobular carcinoma. I was dx in Sept. 2004. One breast has a 12 cm tumor, the other had a 9 cm tumor. (about 5" and 3.5" respectively). I also had a total of 37 lymph nodes removed from both arms, of which 34 were positive for cancer.

I had a full mastectomy, no choice there. That was followed by "dose-dense" A-C-T chemo, which means every other week for 8 rounds. A month off then on to radiaton. Between my fair skin and the effects of radiation in many women who have been on Adiamyacin, my skin melted and I was in pain for several weeks as the burns healed. (You will be on top of this though if your mom needs radiation, so you'll be able to prevent what I wasn't).

My tumors were both ER+ and PR+ and HER2-. I was 44 at diagnosis and started on Tamoxifen in April 2005. I am still taking the tamoxifen. I have not had a recurrance, although I do suffer many side effects from the treatments of my cancer, not the actual cancer itself. I'm still in my 40's but there are days when I feel I must be in my 80's. And, because of the tamoxifen, I'm always having hot flashes or drippy sweats, no matter what other medicines I have tried to counter act it.

And yet, I am grateful to be well enough to "complain" about my side effects. My cancer was diagnosed in what is refered to as an Advanced Stage. Some in the medical community don't buy the Stage 3C, and feel, that because of the number of lymph nodes involved, I am a Stage 4. Either way, I'm alive and have survived longer than some of the original doctors I met gave me hope for.

I hope your mom's cancer is not extensive. I didn't read your post about her diagnosis and I don't really follow this list. I just came across it because I randomly did a search today on lobular cancer.

Best of luck to you and your family.
_________________
JM Age 44
DX9/04 Lobular
10/04 Dbl MRM 9 cm tumor & 16 pos nodes on right side & 12 cm tumor & 18 pos on left
Stage 3C ER+/PR+ HER2-
11/04 AC-T
3/05 -6/05 Rads under arms,sides & chest, collarbones to last ribs. 3rd degree burns,lost 5 layers skin
4/05 Tamoxifen-Is it hot in here or is it just me?

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