Kidney Cancer - please help me

lisah · Regular Joined: 02 May 2005 Posts: 15

Hi

I've just had an update on my biopsy. I have got kidney cancer which has spread to my lymph nodes. Although initially after my CT scan the doc said my bowel and lymph nodes, he only said lymph nodes today. I've gotta go see him on Thursday for a surgery date and to discuss it more. I've just read on the net that Stage 3 kidney cancer is where it has spread to the lymph nodes and stage 4, the bowel. I feel like I haven't got a chance and I feel so numb. Although the doc said it is rare for someone as young as me to have it - I'm 35.

I know I've got to fight this but I feel so numb and so lost, I don't know what to do and I'm so scared.

Lisa

leo · Owner Joined: 23 Sep 2004 Posts: 1574

Lisa

I am so sorry to hear about your diagnosis. It definitely takes some time for the idea to sink in. But it seems you are on the right track, getting treated. Even though your cancer is not confined to the kidney, there are many treatment options for this. You definitely have a shot at this.

best regards,
Leo
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Leonardo F - Webmaster Cancer Forums
Disclaimer: this information is for informational purposes only. It is not medical advice.

lisah · Regular Joined: 02 May 2005 Posts: 15

Thankyou Leo

I am so scared but so determined to beat this. Everyday is long and I feel like I'm living in hell but I've met others that have beat cancer and I just have too.

I need so much hope

Lisa

caryam · New User Joined: 04 Jun 2005 Posts: 9

Lisah, I'm very sorry to hear about your situation. My wife is 29-years-old, and was diagnosed with stage IV Unknown Primary cancer that had spread to her liver & lungs, just seven weeks after we were married, at the age of 26. It was apparent that her Oncologist didn't expect her to live more than a few months, but we are now coming up on three years! In that time we have lived an incredible life, and have even travelled to the other side of the world : )

So, there is always hope...my wife is not cured yet, but in the last three years there has only been one short length of time when her tumors were growing. It has been hard, I'm not trying to avoid how difficult it has been. But don't let ANYONE steal your hope from you, it can get you through when no on else can.

Also, I don't know if you've heard of flickr.com, but it's a free community online that's based around sharing photos...anyway, my wife has started a group on flickr called Too Sexy For My Hair, for people dealing with cancer...it's a new group but there are already a TON of incredible people involved (both those fighting, and those who have beaten it.) You might check it out, as it is a wonderful place to get support! [URL=http://www.flickr.com/groups/27763725@N00/]Here's the link.[/URL]

I truly wish you the best. Don't ever forget that [i]the cancer is not you[/i].
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-Cary

lisah · Regular Joined: 02 May 2005 Posts: 15

Cary

Wow. What an amazing woman your wife must be. I hope that I will be half as strong as she is. People like your wife are my inspiration and truely are the people I admore and strive top be like.

I'm sorry I've not answered sooner, I've been in hospital for major surgery. I had my left kdney removed, part of my bowel and many lymph nodes. It was hell but I've been home 2 days now and I'm feeling better.

I was orginally diagnosed with grade4 kidney cancer and given a few years. However, the surgeon has told me that the kdney cancer had not spread. I have in fact got two kinds of cancer at once; very rare! My kidney cancer had not spread, so now removed. I have in fact got Lymphoma in my bowel (now removed) and lymph nodes (still left). So, Maybe (not confirmed by docs yet...) my lymphoma is treatable and therefore cureable; thats what I'm hoping anyway. I'm waiting to see exactely what type of lymphoma I have.

Soooooo, I'm not out of the woods. I still have mountains to climb and I still don't know exactely where I stand but I still have hope!!! and I won't let it go.

You and your wife sound sooooo amazing and I thank you sooo much for replying to my post. I hope we can keep in touch and get through this together.

Love

Lisa x

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