3 weeks post-retropubic RP

garyfoote · Posted: Sun May 18, 2008 1:56 am Post subject: 3 weeks post-retropubic RP

You can see me stats in my .sig. Doc salvaged one nerve 100%. The othern was involved but Doc removed only oinvolved section[s] in hope of future regeneration.

Right now I'm severely sleep deprived from incontinence. Any ideas to east this would be appreciated.

Now to the crux;

My pathology shows 'mucinois adrenal carcinoma' of the prostate. It is ADT resistant and there are supposedly only 46 cases known [47 now]. No stats to go on for predictive behavgior. No drugs being researched due to no market.

I go back in a week foir a CT [What for?
I dunno.] Two weeks later my first post RP PSA.

Nat. Cancer Soc. is researching thid for me and maybe somewhere there is a agood trial going on,

I'm exhausted - more later.
_________________
Gary

Initial PSA 24.8. Jan 08
Second PSA 18.8. Feb 08
Biopsy Mar 08. 12 cores. 7 positive.
Gleason 8 [4+4]
Radical Retro Pubic Prostatectomy 04/29/08
Diagnosed mucinous adenocarcinoma
PSA 0.0 8 weeks after surgery
Bilateral Inguinal Hernia Repairs 7/10/08
PSA 0.02 October 2008

LizNDale · Posted: Mon May 19, 2008 4:07 pm Post subject: wow

Wow. Sounds like you've had one hell of a 2008. I can't imagine.

I have no advice, just passing by, wanted to let you know we'll pray for you.

LizNDale

Replicant · Moderator Joined: 01 Nov 2006 Posts: 271

Gary, I'm sorry to hear that. You've been dealt a bad hand of cards, haven't you?

Try a google search for this: mucinous adenocarcinoma prostate

Take care with the spelling of the first two words for the best results.

It would seem to be rare indeed. I found this article from the Archives of Pathology and Laboratory Medicine, 2005 (see the link for the full citation). The title is "A Rare Prostatic Tumor in a 48-Year-Old Man". It would seem from the article that there have been about 60 cases reported. The article notes that although the outlook is dismal, there HAVE been cases of long term survivors.
http://tinyurl.com/5ab284

Another article indicates that mucinous adenocarcinoma is not any worse than other prostate cancers. The authors conducted what they believe to be the largest study of this rare cancer (14 cases) and concluded: "MC appears to behave clinically in a similar fashion to AC, with no statistically significant difference in biochemical failure or survival." (By AC they mean "regular" prostate cancer, or conventional adenocarcinoma.)
http://linkinghub.elsevier.com/retrieve/pii/S0090429506006212

It would seem that you are in mostly uncharted waters here. I suggest in addition to reading what literature that is available and consulting with the best cancer experts you can get to, that you contact a very knowledgeable layperson. His name is John and his email--which he publishes openly on WebMD--is az4peaks@newpca.org

Good luck, Gary. My thoughts are with you.
_________________
Replicant

Dx Feb 2006, PSA 9 @age 43
RRP Apr 2006 - Gleason 3+4, T3a, N0M0, pos margins
PSA 5/06 <0.1, 8/06 0.2, 12/06 0.6, 1/07 0.7.
Salvage radiation (IMRT) total dose 70.2 Gy, Jan-Mar 2007@ age 44
PSA 6/07 0.1, 9/07 <0.1, 12/07 <0.1, 4/08 <0.1, 11/08 <0.1
http://pcabefore50.blogspot.com

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