| Author |
|
simplyklb
Senior User
Joined: 04 May 2008
Posts: 231
Location: Near Kansas City MO
|
 Posted: Mon Jun 02, 2008 6:05 pm Post subject: Fatigue |
 |
|
Hi All,
I wish my dad would have talked to someone who had been thru treatment. My dad is having a huge problem with fatigue after his first round of chemo. He has never felt good since he was diagnosed. I know that Dad is not drinking enough fluids. I know that he will be getting fluids tomorrow. How much is too much sleep? How do you manage the fatigue?
It's much easier with my mom because she has had her sister-in-law and cousin who she is close to go thru cancer treatment. They are going to be a huge support for her. In fact, my aunt is taking her to the appt. this Friday with the nurse practitioner.
Kristi
_________________
Dad - Andy, 70, diagnosed with SCLC in May 2008
2/20/38 - 10/15/08 Fly high, Dad!
Mom - Jackie, 67, diagnosed with NSCLC in May 2008 |
|
| Back to top |
|
|
|
brainman
Chief Admin
Joined: 13 Oct 2005
Posts: 4434
Location: Tennessee
|
| Posted: Mon Jun 02, 2008 10:12 pm Post subject: Re: Fatigue |
|
|
Kristi, I am so sorry about your father. I can only speak for my experience and that of my father... neither of us had lung cancer so this may not apply to your father. Both my father and I had a great problem with fatigue during our chemotherapies. I am not to sure how much sleep is too much sleep but I know that we needed a lot of sleep.
I continue to have fatigue but my current fatigue is due to thyroid problems.
Be sure to make sure your father's medical team knows about his fatigue. There might be something they can do to help him.
_________________
Jim
Site Administrator and long-term cancer survivor
1992 Astrocytoma grade 2, left motor strip
2005 Recurrence this time said to be an Oligodendroglioma grade 3, same location.
My Story Part 1: http://cancerforums.net/viewtopic.php?p=7350
My Story Part 2: http://cancerforums.net/viewtopic.php?t=8029
Blog http://jimhawkinsport.blogspot.com/ |
|
| Back to top |
|
|
|
simplyklb
Senior User
Joined: 04 May 2008
Posts: 231
Location: Near Kansas City MO
|
| Posted: Mon Jun 02, 2008 10:16 pm Post subject: Re: Fatigue |
|
|
He has an appt. with the oncologist tomorrow. I know he won't ask but I will.
Kristi
_________________
Dad - Andy, 70, diagnosed with SCLC in May 2008
2/20/38 - 10/15/08 Fly high, Dad!
Mom - Jackie, 67, diagnosed with NSCLC in May 2008 |
|
| Back to top |
|
|
|
ChemoMan
Senior User
Joined: 04 Jun 2008
Posts: 247
Location: South Australia
|
| Posted: Sat Jun 07, 2008 9:56 pm Post subject: Re: Fatigue |
|
|
Hi kristi
You obviously care for your dad 
I got really tired during my treatment. When I started the doctor told me that the one thing everybody got with the chemo I had, was fatigue. Hair loss, nausea, anorexia not everyone gets, but fatigue comes with the treatment. Sometimes I slept 18 hours a day. I also slept at odd times. I think your Dad will sleep as much as he needs too. Help him keep his fluids up and cheer him up as best you can and don't forget to look after yourself.
Thinking of you and your Dad
_________________
Age 52
Diffuse Large B cell Lymphoma
Stage 2a
Finished six cycles of R chop 21 26th May 2008
Officially in remission 9th July 2008
Remission confirmed 1st October 2008
http://cancerforums.net/viewtopic.php?t=9620 |
|
| Back to top |
|
|
|
simplyklb
Senior User
Joined: 04 May 2008
Posts: 231
Location: Near Kansas City MO
|
| Posted: Sat Jun 07, 2008 10:50 pm Post subject: Re: Fatigue |
|
|
My dad has low counts. His WBC was 0.1 and platelets were 5,000 yesterday. The platelets were low enough that he had to get platelets infused. He does not drink much. He sees the oncologist for a checkup. He also has a blood draw and fluids. All on Monday.
Kristi
_________________
Dad - Andy, 70, diagnosed with SCLC in May 2008
2/20/38 - 10/15/08 Fly high, Dad!
Mom - Jackie, 67, diagnosed with NSCLC in May 2008 |
|
| Back to top |
|
|
|
ChemoMan
Senior User
Joined: 04 Jun 2008
Posts: 247
Location: South Australia
|
| Posted: Sun Jun 08, 2008 5:05 pm Post subject: Re: Fatigue |
|
|
I hope all goes well on Monday
Will be thinking of you.
_________________
Age 52
Diffuse Large B cell Lymphoma
Stage 2a
Finished six cycles of R chop 21 26th May 2008
Officially in remission 9th July 2008
Remission confirmed 1st October 2008
http://cancerforums.net/viewtopic.php?t=9620 |
|
| Back to top |
|
|
|
In
Site Admin
Joined: 18 Jul 2007
Posts: 1446
Location: AUSTRALIA
|
| Posted: Sun Jun 08, 2008 7:49 pm Post subject: Re: Fatigue |
|
|
Kristi- thinking of you and your dad today.
let us know how things go- fingers crossed.
(monday here)
_________________
Thinking of you Inica
*Administrator*
~Nose Cancer~
~Car Accident- Broken Back, Ribs, Spleen
Sternum~
~Continous Cervical Cancer~
My Story-
http://cancerforums.net/viewtopic.php?t=6731
9 Lives and still kicking |
|
| Back to top |
|
|
|
ksplat
Super Moderator
Joined: 26 Apr 2007
Posts: 575
Location: Brisbane, Australia
|
| Posted: Mon Jun 09, 2008 7:29 pm Post subject: Re: Fatigue |
|
|
Dear Kristi
I'm sorry to hear the fatigue is so prevalent for your Dad at the mo! I have read on the internet about chemo & fatigue & it can be very debilitating. Apparently, your Dad should embrace it & rest & sleep if he needs it.
I was recently referred to the American Brain Tumour webiste which has information on this. Reading this might help explain a few things for you & your Dad?
Also it his blood counts are too low this can also be attributed to the fatigue. Has his HB (iron) levels been checked too?
God bless you & yours & I pray the appt today goes well.
Cheers, Angie.
_________________
Brother diagnosed with GBMIV Feb 07
Treatment: Radiotherapy, Temodal, Gliadel Wafers, Dexamethasone, Keppra, Dilantin, Clexane
Went to our Heavenly Father after a 19mth battle,, 47 years young.
23 Sep 2008
http://cancerforums.net/viewtopic.php?p=19227
"Without Faith We Have Nothing" |
|
| Back to top |
|
|
|
simplyklb
Senior User
Joined: 04 May 2008
Posts: 231
Location: Near Kansas City MO
|
| Posted: Mon Jun 09, 2008 8:43 pm Post subject: Re: Fatigue |
|
|
Things are on the upswing! Dad's counts are slowly coming up. His WBC is at 0.7 (better than 0.1!). His platelets were 48 (much better than 5!). I realize the numbers are still low but anything in the upward move is music to my ears. He is eating and drinking better today. He had a scrambled egg, two Ensures, and a bowl of soup. He goes back for a visit with the NP, blood draw, and IV fluids on Friday. We are getting him tanked up so he can attend hs oldest granddaughter's wedding Saturday night. One of our next-door neighbors is loaning us a wheelchair for Dad to use.
Kristi
_________________
Dad - Andy, 70, diagnosed with SCLC in May 2008
2/20/38 - 10/15/08 Fly high, Dad!
Mom - Jackie, 67, diagnosed with NSCLC in May 2008 |
|
| Back to top |
|
|
|
brainman
Chief Admin
Joined: 13 Oct 2005
Posts: 4434
Location: Tennessee
|
|
| Back to top |
|
|
|
ChemoMan
Senior User
Joined: 04 Jun 2008
Posts: 247
Location: South Australia
|
| Posted: Tue Jun 10, 2008 6:26 pm Post subject: Re: Fatigue |
|
|
[quote="simplyklb"]Things are on the upswing! Dad's counts are slowly coming up. His WBC is at 0.7 (better than 0.1!). His platelets were 48 (much better than 5!). I realize the numbers are still low but anything in the upward move is music to my ears. He is eating and drinking better today. He had a scrambled egg, two Ensures, and a bowl of soup. He goes back for a visit with the NP, blood draw, and IV fluids on Friday. We are getting him tanked up so he can attend hs oldest granddaughter's wedding Saturday night. One of our next-door neighbors is loaning us a wheelchair for Dad to use.
Kristi[/quote]
All good news  the platelets are encouraging as is the fact he is eating and drinking again. You sound more upbeat too ..... all good
thinking of you and Dad
_________________
Age 52
Diffuse Large B cell Lymphoma
Stage 2a
Finished six cycles of R chop 21 26th May 2008
Officially in remission 9th July 2008
Remission confirmed 1st October 2008
http://cancerforums.net/viewtopic.php?t=9620 |
|
| Back to top |
|
|
|
simplyklb
Senior User
Joined: 04 May 2008
Posts: 231
Location: Near Kansas City MO
|
| Posted: Tue Jun 10, 2008 7:19 pm Post subject: Re: Fatigue |
|
|
I will be anxious to see his counts on Friday.
Kristi
_________________
Dad - Andy, 70, diagnosed with SCLC in May 2008
2/20/38 - 10/15/08 Fly high, Dad!
Mom - Jackie, 67, diagnosed with NSCLC in May 2008 |
|
| Back to top |
|
|
|
pbj11
Site Admin
Joined: 12 May 2007
Posts: 1403
|
| Posted: Tue Jun 10, 2008 10:49 pm Post subject: Re: Fatigue |
|
|
Kristi,
Gosh, I didn't know you were posting in this section. I'm so over focused on the lung cancer section. Sorry! 
Good news to hear the counts are going up for your Dad. I know how much those little itty-bitty movements can raise your spirits.
Remember, anything like soup, ice cream, etc. counts for fluids, so sneak those kinds of things and he'll stay hydrated.
Does he take Neulasta or Neupogen to help with the WBC? Has the doctor put him on antibiotics? My husband didn't have count issues, but if the WBC ever dipped below 4 (I think) he would automatically be put on antibiotics for his protection. They are so vulnerable when those WBC's are low. Please make sure his doc knows he will be in a big social situation on Saturday as he could be at a risky exposure. Maybe he'd consider a little disposable mask and keep the hand sanitizer handy.
Hugs,
PBJ
_________________
Husband diagnosed with NSCLC Stage IV. (Non-Small Cell Lung Cancer) Fought & lived 2 1/2 years with multiple lines of treatment.
Post describing our battle: http://cancerforums.net/viewtopic.php?t=7026&postdays=0&postorder=asc&start=0 |
|
| Back to top |
|
|
|
|
Search 
Email Digests
Register to post
Profile 
Check private messages 
Log in
What is this ?
We subscribe to the HONcode principles. Verify here. All content and posts are copyright.
