Persistent pain

garyfoote · Posted: Thu Jul 03, 2008 10:48 am Post subject: Persistent pain

Hi,

I had an RRP on April 29th and since then have not been able to sit for more than 5 minutes without lots of pain in my surgical bed. It feels like I'm sitting on a softball sized rock. Upon standing or lying down this pain goes away. CT shows surgical bed looks fine.

Has anyone else experienced this? My urologist is stymied...
_________________
Gary

Initial PSA 24.8. Jan 08
Second PSA 18.8. Feb 08
Biopsy Mar 08. 12 cores. 7 positive.
Gleason 8 [4+4]
Radical Retro Pubic Prostatectomy 04/29/08
Diagnosed mucinous adenocarcinoma
PSA 0.0 8 weeks after surgery
Bilateral Inguinal Hernia Repairs 7/10/08
PSA 0.02 October 2008

garyfoote · Posted: Sun Jul 06, 2008 6:40 pm Post subject: Scar tissue

My primary care doc thinks the problem is growing scar tissue within the surgical bed. My urologist says scar tissue cannot be removed from a RP surgical bed without causing permanent incontinence. He also expressed concerns about a serious,repeating anastamosta stricture as adhesions grow back.

I am reduced to lying on my right side, taking pain killers and only rising to go to the bathroom. If this is irreversible my life is pretty much over. If anyone knows of someone/someplace where help may be available please post to me. I'm losing my whole life...
_________________
Gary

Initial PSA 24.8. Jan 08
Second PSA 18.8. Feb 08
Biopsy Mar 08. 12 cores. 7 positive.
Gleason 8 [4+4]
Radical Retro Pubic Prostatectomy 04/29/08
Diagnosed mucinous adenocarcinoma
PSA 0.0 8 weeks after surgery
Bilateral Inguinal Hernia Repairs 7/10/08
PSA 0.02 October 2008

brainman · Posted: Sun Jul 06, 2008 7:50 pm Post subject: Re: Persistent pain

Gary, I am so sorry about the pain you are having. I have never had Prostate Cancer so have never experienced the pain you are having. I know that scar tissue pain is common in a lot of abdominal pain. Unfortunately, I do not know how they usually treat it.

Best wishes.
_________________
Jim
Site Administrator and long-term cancer survivor
1992 Astrocytoma grade 2, left motor strip
2005 Recurrence this time said to be an Oligodendroglioma grade 3, same location.
My Story Part 1: http://cancerforums.net/viewtopic.php?p=7350
My Story Part 2: http://cancerforums.net/viewtopic.php?t=8029
Blog http://jimhawkinsport.blogspot.com/

garyfoote · Posted: Mon Jul 07, 2008 4:57 am Post subject: persistent pain treatment

Hi Jim,

Abdominal pain is definitely there too. I'm going to Dartmouth Hitchcock for a second opinion on possible treatments. I'll definitely post back here. I pray that that can do something about it...
_________________
Gary

Initial PSA 24.8. Jan 08
Second PSA 18.8. Feb 08
Biopsy Mar 08. 12 cores. 7 positive.
Gleason 8 [4+4]
Radical Retro Pubic Prostatectomy 04/29/08
Diagnosed mucinous adenocarcinoma
PSA 0.0 8 weeks after surgery
Bilateral Inguinal Hernia Repairs 7/10/08
PSA 0.02 October 2008

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