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APML (a.k.a APL) info What is this ?

 
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kiwi24
New User


Joined: 27 Jul 2008
Posts: 3
Location: Auckland, New Zealand
PostPosted: Mon Jul 28, 2008 4:29 pm    Post subject: APML (a.k.a APL) info Reply with quote
Hi there,

I am a New Zealander diagnosed with APML (a.k.a APL) leukemia in Jan this year. I have been through 4 rounds of chemo and am in full remission (YAH!). I am about to start on maintenance chemo which I am told will be for about 18-24 months of taking drugs.
As APML is fairly rare I have not spoken with any-one with it and would like to, all the leukemia patients I have met have had AML which appears to have a different treatment protocol. I especially would like to know about the long term affects.

Thanks
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brainman
Chief Admin


Joined: 13 Oct 2005
Posts: 4434
Location: Tennessee
PostPosted: Mon Jul 28, 2008 8:57 pm    Post subject: Re: APML (a.k.a APL) info Reply with quote
Hi kiwi24. I am very sorry that you have this rare for of Leukemia. I am not sure we currently have anyone with that specific type of Leukemia. My father died due to complications of ALL so at least to a degree I know what you must be going through. We have many members who are familiar with AML, CLL, CML.... the whole alphabet of Leukemias. Now we can add APL to the list.

You are in my thoughts and prayers.
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Jim
Site Administrator and long-term cancer survivor
1992 Astrocytoma grade 2, left motor strip
2005 Recurrence this time said to be an Oligodendroglioma grade 3, same location.
http://cancerforums.net/viewtopic.php?t=2405My Story Part 1: http://cancerforums.net/viewtopic.php?t=2528
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cminich
New User


Joined: 17 Apr 2007
Posts: 7
Location: Owasso, OK
PostPosted: Tue Jul 29, 2008 8:41 am    Post subject: APL Reply with quote
My husband died of APL at age 38. He went through one round of chemo and chrashed 3 days into his next round. He was in remission when he died. There are alternatives to chemo. There is quite a bit of info on the Leukemia site:
http://www.leukemia-lymphoma.org/all_page?item_id=8459

If I can help any, let me know.
_________________
Cindy Minich
cindy_minich@yahoo.com
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kiwi24
New User


Joined: 27 Jul 2008
Posts: 3
Location: Auckland, New Zealand
PostPosted: Tue Jul 29, 2008 3:37 pm    Post subject: Re: APML (a.k.a APL) info Reply with quote
Thanks for your kind words and the internet link. I will continue my research and contact you if i need info.
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