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ALPS What is this ?

 
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suzi.rider
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PostPosted: Sat Nov 20, 2004 1:15 pm    Post subject: ALPS Reply with quote
My girlfriend has a sister who has been battling cancer and has recently been diagnosed with (ALPS?).What is it?
Thanks,Steve
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leo
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Joined: 23 Sep 2004
Posts: 1574
PostPosted: Sat Nov 20, 2004 9:11 pm    Post subject: Re: ALPS Reply with quote
Suzi

You may be referring to autoimmune lymphoproliferative syndrome... is that it ?

regards,
Leo
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Leonardo F - Webmaster Cancer Forums
Disclaimer: this information is for informational purposes only. It is not medical advice.
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PostPosted: Sat Nov 20, 2004 11:44 pm    Post subject: Re: ALPS Reply with quote
[quote="leo"]Suzi

You may be referring to autoimmune lymphoproliferative syndrome... is that it ?

regards,
Leo[/quote]
I believe that could be it,I found out today that she was misdiagnosed with lymphatic? cancer,and now they are saying that it is this rare genetic disease,Is there somewhere that I can get more info on this?Another of her sisters is now freaked out about her and her children contracting this. I tryed to look online Med. dictionary and all they had were reference to Switzerland. Thanks,Steve
p.s. The word now is that they want her to go to Bethesda to study her disease.
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leo
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Joined: 23 Sep 2004
Posts: 1574
PostPosted: Sun Nov 21, 2004 12:29 pm    Post subject: Re: ALPS Reply with quote
Hello

I think you should look at this
http://research.nhgri.nih.gov/alps/

Also, probably the NIH is the best place to go for this, since they have seen this before.

regards,
Leo
_________________
Leonardo F - Webmaster Cancer Forums
Disclaimer: this information is for informational purposes only. It is not medical advice.
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