Very Rare Lung Cancer

tapyeno · New User Joined: 28 Aug 2008 Posts: 1

My wife Rose has been diagnosed as having [u][b]Salivary Gland Type Lung
Cancer[/b][/u], a very rare one - only 1 in a 1000 lung cancers are of this
type.
She has had a lung removed.
In surgery it was found the cancer had spread to her lymph glands
which were also removed.

The concern now is that if the cancer had got this far may it have
spread elsewhere in her body? We have been told there is a 50/50
chance the cancer may have spread.
Chemotherapy has been discussed with the consultant yeaterday, but
there is no evidence that chemo is effective with this type of cancer.
If it has spread the prognosis is not good as surgery would not be an
option.

I am finding out what I can now about any alternative treatments which
may help in preventing this cancer coming back.

Has anyone here had this type of cancer, or know of anyone who has
whom I could get in contact with?

Many thanks,

Pat Mahoney

brainman · Posted: Thu Aug 28, 2008 10:52 pm Post subject: Re: Very Rare Lung Cancer

Pat I am very sorry that your wife has cancer. Unfortunately, since it is such a rare type of Lung Cancer, I have never come across it. Possibly someone ease has more information.

It does not sound like her medical team has finished was the staging work up to see if it has already spread. Those scans will determine the best course of treatment for her.

You and your wife are in my thoughts and prayers.
_________________
Jim
Site Administrator and long-term cancer survivor
1992 Astrocytoma grade 2, left motor strip
2005 Recurrence this time said to be an Oligodendroglioma grade 3, same location.
http://cancerforums.net/viewtopic.php?t=2405My Story Part 1: http://cancerforums.net/viewtopic.php?t=2528
My Story Part 2: http://cancerforums.net/viewtopic.php?p=7350
My Story Part 3: http://cancerforums.net/viewtopic.php?t=8029
Blog http://jimhawkinsport.blogspot.com/

dano · Posted: Fri Aug 29, 2008 6:16 am Post subject: Re: Very Rare Lung Cancer

Hi Pat;
I'm very sorry to here of your wifes condition, it is such a difficult transition with a diagnose of cancer.
I have less experience than Jim so I'm not much help for some information, but I did want to welcome you into the forum, and if you can't get answers, you can have a place to come to share what your going through and have some friends that know what it's like getting kicked in the butt with bad news.
I'll be praying for you.
God Bless
Dan
_________________
54 year old male in Hawaii
Diagnosed Nov. 9,2007 with NSCLC IV
with Mets to the lymphs and brain
Had full brain radiation treatment in Jan 08
Currently on chemo treatments every 3 weeks
with Alimta
and taking Lovenox for blood clots
Now back to work full time
http://cancerforums.net/viewtopic.php?t=9993

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