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wings
New User
Joined: 21 Jun 2008
Posts: 1
Location: Lancaster county, PA
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 Posted: Sun Jun 22, 2008 11:56 am Post subject: Hi my name is Linda |
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| In December I was told that I had breast cancer and I decided to have surgery. When I came home from the hospital empty-handy with no info on what would have made me more comfortable. Like a camisole (shirt)with pockets for train tubes and a heating pad for muscle cramps. These items would have made my first night home more comfortable. Please share anything that made your recovery easier for you. I am creating a list for a recovery Care Package. |
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In
Site Admin
Joined: 18 Jul 2007
Posts: 1446
Location: AUSTRALIA
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| Posted: Mon Jun 23, 2008 1:38 am Post subject: Re: Hi my name is Linda |
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Hi, Linda- welcome to the Forum,
I'm so sorry about your Breast Cancer and you not having the information and advice/support you needed back then.
Thats why I value here so much more now. It is great for help and advice and even asking questions.
Feel free to post your information help and advice to others in the Breast Cancer Thread.
_________________
Thinking of you Inica
*Administrator*
~Nose Cancer~
~Car Accident- Broken Back, Ribs, Spleen
Sternum~
~Continous Cervical Cancer~
My Story-
http://cancerforums.net/viewtopic.php?t=6731
 9 Lives and still kicking |
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Rotorhead
Regular
Joined: 04 Jun 2008
Posts: 34
Location: Hawaii
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| Posted: Sat Jun 28, 2008 9:33 pm Post subject: Re: Hi my name is Linda |
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Linda-
Welcome! I've gone on a crusade for stuff like this. I'm in the military and I got basically zero information beyond "you have cancer and need to get started on treatment next week" when I was diagnosed. There was no coordination between chemo, radiation and surgical; I had no idea that there were all these other entities available and waiting (like a nutritionist, genetic counseling, psychologist, psychiatrist, etc). I got no literature on cancer, no lab reports or medical journal articles about clinical trials...you get the picture. I felt that I deserved a lot more, so I'm gathering all this info and hope to turn it into something that helps others like me out - whether it be an info package posted at the hospital, a book or an online resource I don't know just yet. Also, an online blog helps me keep my family (which is large and spread across the country) up to date with my experiences.
Basically I'm trying to turn it into something positive, and it's worked for me so far.
Welcome to the forum!
ALoha,
RH
_________________
Diagnosed Stage 3 rectal cancer Nov 07
6 weeks chemo/rad Dec 07/Jan 08
Surgery (TME) 11 Feb 08
6 months FOLFOX started March 08
My blog: http://rotorheadsblog.blogspot.com/ |
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brainman
Chief Admin
Joined: 13 Oct 2005
Posts: 4440
Location: Tennessee
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Vee Smith
Moderator
Joined: 12 Feb 2006
Posts: 818
Location: UK
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| Posted: Sun Jun 29, 2008 5:21 am Post subject: Re: Hi my name is Linda |
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Hi - it horrifies me that this kind of information is not automatically given to newly diagnosed patients when they start treatment. Despite any faults it may have, the NHS does provide it and all the clinics have leaflets about equipment and clothing.
However, I have found the breast cancer sites helpful as well, and in case you haven't tracked them down yet, to start you off here is an Australian one:
http://www.bcna.org.au/content/view/763/1337/
and an American one:
http://www.breastcancer.org/ |
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